Showing posts with label RSD. Show all posts
Showing posts with label RSD. Show all posts

06 December 2012

Quench the Fire Run

Quench the fire flyer

Dear SoCal friends,

Causalgia (aka CRPS II or RSD) should be very high on your list of things that you do not want. If you're the sort who runs without being chased, come out this Sunday and support the USC Pain Center.


Quench the Fire Run



Also, MacGyver will be there!



Love,

Adam



16 June 2009

Resources for Causalgia (CRPS/RSD)

Here's a helpful guide to resources on Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy (CRPS/RSD/Causalgia)

Resources and Relief for Reflex Sympathetic Dystrophy



For those of you who don't know, Causalgia (CRPS/RSD) should rank high on the list of 'Things-You-Don't-Want'.

On the IASP definition:


Causalgia
A syndrome of sustained burning pain, allodynia, and hyperpathia after a traumatic nerve lesion, often combined with vasomotor and sudomotor dysfunction and later trophic changes.


Or as it was first described by Silas Weir Mitchell in 1872 after the Civil War

"We have some doubt as to whether this form of pain ever originates at the moment of the wounding. . . Of the special cause which provokes it, we know nothing, except that it has sometimes followed the transfer of pathological changes from a wounded nerve to unwounded nerves, and has then been felt in their distribution, so that we do not need a direct wound to bring it about. The seat of the burning pain is very various; but it never attacks the trunk, rarely the arm or thigh, and not often the forearm or leg. Its favorite site is the foot or hand. . . Its intensity varies from the most trivial burning to a state of torture, which can hardly be credited, but reacts on the whole economy, until the general health is seriously affected....The part itself is not alone subject to an intense burning sensation, but becomes exquisitely hyperanesthetic, so that a touch or tap of the finger increases the pain." quoted in UCLA pain exhibit


In other words, in causalgia part of your body feels like it's constantly on fire.

02 September 2007

Reflex Sympathetic Dystrophy Syndrome

I mentioned Reflex Sympathetic Dystrophy Syndrome (RSDS) in an earlier post on the USC event. There's a lot of good information on the syndrome at the Reflex Sympathetic Dystrophy Syndrome Association website.

29 August 2007

USC Pain Run

This will be an important event. Normally I only run when chased, but I'll make an exception for this. Please help out however you can:
Dear Friends and Colleagues,

The USC Pain Center is planning an exciting event:

The USC, QUENCH THE FIRE, 5 K Run
December 2, 2007, in Long Beach

for the support of education, research, and treatment of RSD

RSD (Reflex Sympathetic Dystrophy, aka Complex Regional Pain Syndrome) is a condition caused by a malfunction within the nervous system that causes chronic, burning pain. The condition can be severe and disabling.

Research, education, and most importantly, treatment efforts have been greatly hampered by a lack of awareness of this condition, even in the medical community. But RSD is not rare—estimates vary that between 200, 000 to 1.2 million Americans are currently suffering with this condition.

In order to garner as much support for this wonderful project as possible, we have one simple request of you. TO HELP SPREAD THE WORD, all you need to do is to forward this email/ letter to everyone you know.

Of course, you can also email us back at 5k@uscpain.org to get more information, to volunteer at the race, to help in the planning of the event, to help get corporate sponsors, to donate items, or even to make tax deductable contributions to “Keck School of Medicine of USC” (note “USC Pain Center” in the memo section). Or simply send us your email and/or regular mail addresses to be on our mailing lists.

Our hope is that this ‘grass roots’ level of support finally gets RSD the attention it deserves! Your help CAN make a difference. Thank you so much for your interest and support of this exciting event, and we sure hope you can be with us on race day – it promises to be a very special event!

Best regards,
Steven Richeimer, MD
Chief, Division of Pain Medicine

I'll post additional information as I get it.

20 August 2007

USC Pain Run

This will be an important event. Normally I only run when chased, but I'll make an exception for this. Please help out however you can:
Dear Friends and Colleagues,

The USC Pain Center is planning an exciting event:

The USC, QUENCH THE FIRE, 5 K Run
December 2, 2007, in Long Beach

for the support of education, research, and treatment of RSD

RSD (Reflex Sympathetic Dystrophy, aka Complex Regional Pain Syndrome) is a condition caused by a malfunction within the nervous system that causes chronic, burning pain. The condition can be severe and disabling.

Research, education, and most importantly, treatment efforts have been greatly hampered by a lack of awareness of this condition, even in the medical community. But RSD is not rare—estimates vary that between 200, 000 to 1.2 million Americans are currently suffering with this condition.

In order to garner as much support for this wonderful project as possible, we have one simple request of you. TO HELP SPREAD THE WORD, all you need to do is to forward this email/ letter to everyone you know.

Of course, you can also email us back at 5k@uscpain.org to get more information, to volunteer at the race, to help in the planning of the event, to help get corporate sponsors, to donate items, or even to make tax deductable contributions to “Keck School of Medicine of USC” (note “USC Pain Center” in the memo section). Or simply send us your email and/or regular mail addresses to be on our mailing lists.

Our hope is that this ‘grass roots’ level of support finally gets RSD the attention it deserves! Your help CAN make a difference. Thank you so much for your interest and support of this exciting event, and we sure hope you can be with us on race day – it promises to be a very special event!

Best regards,
Steven Richeimer, MD
Chief, Division of Pain Medicine

I'll post additional information as I get it.